Monday, July 1, 2013

My Giant Congenital Melanocytic Nevus

A giant congenital melanocytic nevus is essentially a mole and a giant one means its big, which means it carries additional risk for melanoma.  The more abnormal cells the greater the risk.  Congenital means present from birth.  Melanocytic means a concentration of melanin, which is skin pigment.  Nevus is doctor talk for mole.  

"C", our son, was born with one of these on his head. 14cm in diameter.  (If you are not sure, it is the dark spot on your right just NE of his left eye.)  



It's one thing being an innocent bystander to witness a child with an obviously visible large mole.  As an anxious parent awaiting the birth of a child it's all the emotion of the "miracle" of child birth with a "HOLY $*@!" attached.(Not a huge "HOLY $*@!" just a small one as he is healthy otherwise.)

We are fortunate in that it is a singular mole.  Many times these are accompanied by dozens of satellite moles all over the body creating a different kind of challenge.  After a few tests "C" was cleared of any neurological melanocytic interference, which means the issue is only skin deep.     

As parents we were confronted with all kinds of questions.  Is it cancerous?  Are there other risks?  Can it be treated/removed? What are the options in an age of swift medical tech advancement?  So we embarked on a series of doctor visits for fact finding.    




5 comments:

  1. Is there anyway we can speak privately? Our baby is 8 months old and born with a similar nevus

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  2. Hi. I just randomly came across this page and wanted to say I was born with almost the exact same looking birthmark as the baby here. It was also on my left side covering the outer part of my eyebrow. I am 32 now and had multiple tissue expansions (one of the first patients ever) and reconstruction done starting when I was 4, and 99% of people never even notice. I’m sure the surgeries are even better and more precise today!

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    1. Hello my son is only 10 days old n born with D's type of nevus.. he hv many satellite moles all over his body.. v r really worried is it cancerous v need to consult the doc. Immediatetly r wat plz give yo opinion

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  3. Hi my daughter also has sinilar neavus she is 2 years ...can i talk with you private i wanna ask you about surgeries plzz

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  4. Hi my daughter also has like this she is 2 years ...can i talk with you private i wanna ask you about surgeries plzzz

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